Day 1 Scientific Symposium : Genetic update
Monday, April 29, 2024 10am – 12pm ET
Target Audience: Scientists and Clinicians
To register, click here
"Investigating the genetic underpinnings of NORSE/FIRES with whole genome sequencing"
Danielle deCampo, MD, PhD, (CHOP) and
Ingo Helbig MD, (CHOP)
And a brief presentation of a prospective study:
"Investigation of the Use of VNS in Treating NORSE"
PI: Laura Mantoan Ritter, MD, PhD with Richard Selway, MA MMedSci MB BChir BSc FRCS(neurosurg) (Charles Sykes Memorial Fund (King’s College Hospital Charity)
Day 2 NORSE/FIRES Family Conference : Research Updates, Transition of Care, Post-Intensive Care Syndrome
Wednesday, May 1, 2024 10am – 12:30 pm ET
Target Audience: Patients, Families, Clinicians, and Scientists
To register, click here.
Leads: Krista Eschbach, MD, (Children's Hospital-Colorado)
Teneille Gofton, MD, FRCPC, (Western Univ. Canada)
Day 3 Scientific Symposium : Metagenomics and autoantibodies
Thursday, May 9, 2024 10am -12:00 pm ET
Target Audience: Scientists and Clinicians
To register, click here.
"Metagenomics and Host Transcriptomics of NORSE"
Mary Rolfes-Karalius, MD, (UCSF)
"Novel autoantibodies in NORSE"
Aaron Bodansky, MD, (UCSF)
Discussion with Michael Wilson, MD, (UCSF).