Survey on Educational Priorities for Coma and Disorders of Consciousness (DoC)
The Curing Coma® Education Module, as part of the mission of the Curing Coma Campaign, recognizes the critical role of education in advancing the understanding and management of coma and disorders of consciousness (DoC). In light of findings from the COMETOGETHER survey (a Curing Coma Campaign initiative), which underscored the lack of consensus among healthcare professionals and inconsistent practices in coma care globally, there is a pressing need for standardized education across the continuum of care.
We conducted a pilot survey at the World Coma Day 2024 among the attendees to understand the educational needs and preferences of professionals, patients and caregivers. Given the keen interest and participation from attendees, we aim to broaden the scope of the survey to involve stakeholders worldwide, encompassing not only healthcare professionals but also patients and families, who play vital roles in advancing the field of coma and disorders of consciousness.
As we endeavor to develop and disseminate relevant education content across the globe, this survey aims to learn from global stakeholders, including healthcare professionals, patients, and families. Our goal is to foster a collaborative approach to coma education that empowers healthcare professionals, supports patients and families, and ultimately advances the field towards improved outcomes and quality of life for individuals affected by disorders of consciousness.
Aims of survey:
- To identify the educational needs and preferences of global stakeholders (healthcare professionals, patients, and families) regarding coma and disorders of consciousness.
- To determine gaps in current educational resources and content to address inconsistencies in care.
- To understand the most effective methods for delivering educational materials to diverse audiences worldwide.
Duration: 5 minutes
Audience: All Members
Contact:
Shraddha Mainali
Survey Closes: August 1, 2025
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Global survey on practice of sedation in Pediatric patients in Neurocritical care units- SPN-ICU Survey
Pediatric neurocritical care is an expanding multidisciplinary field which includes management of different neurological and neurosurgical conditions along with different neuromonitoring modalities. The main objective of the pediatric neurocritical care is to prevent secondary brain injuries or secondary spinal injuries caused by infections, seizures, systemic illness, postoperative complications and cardiac arrest. Recent data indicate that the development of a pediatric neurocritical care unit within an institution that includes experts from neurosurgery, neurology, and critical care medicine may improve patient outcomes. [1,2]
The specific aim of our survey is to assess the practices of sedation in pediatric patients with neurological and neurosurgical diseases in ICUs across various hospitals setting globally. Primary outcome: The primary outcome of the study is to assess the pharmacological agents used for sedation in pediatric patients with neurological and neurosurgical diseases in ICU. Secondary outcome: The secondary outcome of the study is to determine:
1. Approaches to maintain and monitor sedation in pediatric patients with neurological and neurosurgical diseases in ICU.
2. Approaches to wean sedation in pediatric patients with neurological and neurosurgical diseases in ICU.
Duration: 10 minutes
Audience: All Members
Contact:
Hemanshu Prabhakar
Survey Closes: August 1, 2025
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Neurocritical Care Experience and Attitudes Related to Organ Donation in the USA
There are a myriad of ethical controversies related to organ donation after brain death/death by neurologic criteria (BD/DNC) or cardiac death/death by circulatory-respiratory criteria.[1–5] Although there are many surveys on views of various populations about the ethics of organ donation, there is no data on Neurocritical Care Society (NCS) member experience and attitudes related to organ donation in the USA.[6–11] The NCS Ethics Committee created a survey to address this knowledge gap. The aim of this survey is to identify NCS member experience and attitudes related to organ donation in the USA (given international variability in organ donation policies and practices). The results of this survey will guide the NCS Ethics Committee’s future member support pertaining to ethical controversies related to organ donation.
Duration: 10 minutes
Audience:
Restricted to US users
Contact:
Ariane Lewis
Survey Closes: August 1, 2025
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Attitudes and Experiences of the Organ Donation System Among ICU Providers
Attitudes around the organ donation process among ICU providers is underreported in the literature to date. Articles that have been published include small surveys targeting subgroups, and none address the changing landscape following the CMS 2020 Final Rule. Furthermore, the phenomenon of ICU providers withdrawing their consent as first person authorized donors following interactions with the donation process has not yet been reported. We are interested to learn whether this represents a local phenomenon, driven by the strategies employed by a single problematic OPO, one that affects scattered regions with low-performance OPOs, or if this is a national issue reflecting the changed incentive structure. A national survey, targeted at ICU providers in a variety of OPO catchments, would best address this question.
Duration: 10 minutes
Audience:
Restricted to US users
Contact:
Palmer Greene
Survey Closes: October 1, 2025
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Acute External CSF Drainage Strategies in Adult Neurocritical Care: An International Survey (BDA Study)
Attitudes around the organ donation process among ICU providers is underreported in the literature to date. Articles that have been published include small surveys targeting subgroups, and none address the changing landscape following the CMS 2020 Final Rule. Furthermore, the phenomenon of ICU providers withdrawing their consent as first person authorized donors following interactions with the donation process has not yet been reported. We are interested to learn whether this represents a local phenomenon, driven by the strategies employed by a single problematic OPO, one that affects scattered regions with low-performance OPOs, or if this is a national issue reflecting the changed incentive structure. A national survey, targeted at ICU providers in a variety of OPO catchments, would best address this question.
Duration: 15 minutes
Audience:
Restrict to Physicians
Contact:
Guillaume Plourde
Survey Closes: October 1, 2025
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