Submit a Research Survey Request

Pending approval from the Research Operations Subcommittee, NCS members are allowed the opportunity to post surveys for voluntary participation from the NCS membership. Surveys are reviewed by the subcommittee on a monthly basis.

Active Surveys

Disorders of Consciousness Practice Guideline Survey

Spaulding Rehabilitation Hospital, in collaboration with Massachusetts General Hospital, the Spaulding Hospital Cambridge Department of Physical Medicine and Rehabilitation and the Indiana University School of Medicine, is recruiting NCS members, affiliates of NCS members and attendees of NCS sponsored events who provide assessment and treatment services to individuals with disorders of consciousness (DoC) to complete a survey addressing current practice guidelines for clinical management.

This survey is part of a federally funded study supported by the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR).

Criteria for Participation

Physicians, advanced practice providers, nurse practitioners, psychologists, neuropsychologists, nurses and therapists are encouraged to participate in this survey.

The online survey takes approximately 10-15 minutes to complete. Respondents will receive a $30 stipend, and the survey will close after 350 surveys are completed.
 

View a brief video for more information about the study.

Duration: 10 minutes
Contact: Joseph Giacino
Survey Closes: August 30, 2024

Take the Survey

 

Exploring the Impact of Medication Confounders on Determining Death by Neurologic Criteria: An International Survey Investigating Practice Variation

The purpose of this survey is to elucidate current practices and perceptions surrounding medication confounders in brain death determination. Specifically, this survey seeks to understand:

  1. Who may be the individuals assessing potential drug confounders in brain death determination.
  2. Whether there is a formal or informal guideline or institutional policy/procedure that encompasses potential drug confounders in brain death and how to account for them.
  3. Whether a requirement exists for medication review prior to brain death determination.
  4. Whether ancillary testing, reversal agents or serum drug concentrations are utilized in patients in whom a medication confounder may be a concern.

The targeted audience for this survey is physicians, advanced practice providers, pharmacists and nurses who practice at institutions where patients may undergo brain death determination.

Duration: 10 minutes
Contact: Devin Holden
Survey Closes: June 30, 2024

Take the Survey

 

How do you manage non-survivable head trauma?

While there is literature regarding communication with families and medical management of those who have been declared brain dead,
our purpose is to further investigate the way in which providers approach this unique situation of non-survivable patients, and how this
might affect downstream medical management. 

Much of the existing literature focuses on strategies for providers to communicate with families whose loved ones have been declared
brain dead. While we are more focused on the gray zones of non-survivable injuries without the diagnosis of brain death, these
resources lay out a groundwork for counseling families of patients with the most extreme of neurological injuries. Therefore, we
designed our survey to include questions that explore how similar communication styles may play a role in management of these
patients. Additionally, because the physician’s own experience can impact their decision-making in these situations, we included
questions that explore physicians’ perspectives and comfortability in these situations. A key point we wanted to learn about is what
barriers may be in place between providers and patients’ families, and how this may play a role in overall patient care. We used
RedCap survey software to design a survey exploring these points of interest.
 

Duration: 10 minutes
Audience: Restrict to MDs, APPs, U.S., International, Trainees
Contact: Mackenzie Castellanos
Survey Closes: August 30, 2024

Take the Survey

 

Disorders of Consciousness Guideline Knowledge Translation Survey

Specific Aim: Characterize provider awareness, attitudes, perceptions of contextual determinants and use of the 2018 American
Academy of Neurology -American Congress of Rehabilitation Medicine - National Institute on Disability, Independent Living, and
Rehabilitation Research DoC practice guidelines for diagnosis and prognosis among providers who care for persons with disorders of
consciousness.


Rationale: The first step toward changing clinical practice is to identify modifiable barriers to change. In Aim 1, we will conduct a
national survey of clinicians who provide acute and post-acute care to persons with DoC to identify knowledge, beliefs, perceptions of
facilitators and barriers and patterns of use relative to selected diagnostic and prognostic recommendations included in the DoC
practice guidelines.


Aims 2 and 3 will be informed by survey results collected in Aim 1. We will develop knowledge translation tools and strategies (aim 2)
to be pilot tested in 6 different clinical settings (aim 3).
 

Duration: 20 minutes
Audience: All Members
ContactKatherine Golden
Survey Closes: August 30, 2024

Take the Survey

 

Blood transfusion thresholds in patient with acute spinal cord injury: A national practice pattern survey

The primary objective of this study is to investigate the hemoglobin level target and transfusion practices in patients with acute spinal cord injury among different medical specialties involved in their care. The secondary objectives include evaluating MAP augmentation practices, monitoring spinal cord perfusion pressure (SCPP), and assessing the willingness of healthcare providers to participate in future clinical trials.

We have chosen a national survey design to evaluate the perspectives of various medical professionals involved in the acute care of SCI patients. This approach is appropriate given the paucity of prior research in this topic, as it will provide a starting point to proceed with further research and explore the awareness and practices of healthcare providers.

2 Primary Objective:
The primary objective is to investigate the hemoglobin level target and transfusion practices in patients with acute spinal cord injury among the different specialties involved in their care.

2.1 Primary endpoint:

  • Hemoglobin level target in patients with acute SCI


2.2 Secondary objectives:

  • MAP augmentation practices (due to similar pathophysiology)
  • Monitoring spinal cord perfusion pressure (SCPP)
  • Willingness of healthcare professional to randomize their patients in future clinical trials

Duration: 10 minutes
Audience: Restrict to MDs, Restrict to Trainees (fellows, residents, medical students)
ContactMohamed Alhantoobi
Survey Closes: August 30, 2024

Take the Survey

 


Survey Submission Requirements

Pending approval from the Research Operations Sub-Committee, NCS Members are allowed the opportunity to post surveys for free-will participation from the NCS Membership. NOTE: Surveys are reviewed by the Committee on a monthly basis. Following submission of the form you will receive a follow up email from NCS staff regarding whether your survey has been approved. NOTE: Survey submissions are usually reviewed and approved on a monthly basis. Please provide ample time for review before following up.

If you would like to be considered to have your survey to be posted, please review the following requirements:

  1. Review the NCS Policy and Procedures for research survey requests.
  2. Complete the required Submission Form below.
  3. If accepted, complete a Feedback Survey after the survey has closed.

Past Approved Surveys

Name of Survey
Survey Opened
Contact Name

COVID-19 Neurocritical Care Survey
June 31, 2023
Deborah Green-LaRoche

Utilization and Impact on Fellowship Training of Non-Physician Advanced Practice Providers in Neuro-Intensive Care Units of Academic Medical Centers: A Survey of Neurocritical Care Program Directors and Trainees
July 7, 2021
Marc Alain Babi

Systems-Based Hospital Practices of Acute TBI
April 7, 2021
Roy Poblete

Early Post-traumatic Seizure Prophylaxis: A Worldwide Survey on Current Practice
April 7, 2021
Gretchen Brophy

Point-of-Care Ultrasound (POCUS)/Critical Care Ultrasound (CCU)
April 7, 2021
Judy Ch'ang

NCS' Assessment of the Advance Practice Provider (APP) Response to COVID-19
September 11, 2020
Lindsay Marchetti

COVID-19 and Telehealth in the Intensive Care Unit Setting
September 11, 2020
Sarah Nelson

Acute Stroke Management of Tandem Occlusions during Mechanical Thrombectomy (MT) Survey
August 23, 2020
Santiago Ortega-Gutierrez

Perceptions of Health Care Providers Worldwide Regarding COVID-19 Pandemic & Its Impact on Patient Care, Resources, and Clinical Education
April 28, 2020
Sarah Wahlster

Practice Changes for Acute Ischemic Stroke During COVID-19
April 16, 2020
Tamara Strohm

Moyamoya Disease Survey of International Perioperative Practices

March 13th, 2020

Carolina B Maciel

Hypotension in the ICU
January 16, 2020
Ward van der Ven

Career Satisfaction
October 7, 2019
Shyam Rao

Sedation Management in Patients with Severe Traumatic Brain Injury Survey
August 13, 2019
Victoria Mcredie

Drug Shortages
July 18, 2019
Emily Durr

Laboratory Values that Preclude Brain Death Diagnosis
July 9, 2019
David Lerner

Determination of the Inter Rater Reliability of the modified Fisher Scale
July 2, 2019
Christopher Melinosky

Pharmacogenomics of Calcium Channel Blocker Medication in Stroke and Subarachnoid Hemorrhage
May 16, 2019
David Freeman